Quick Intro and how God is working in my life....

I may or may not know all of you or most of you but here is a quick intro into me, Shannon or Shan or most of the time I'm called Mommy or Lady Jane (that's my husbands' nickname for me and have no idea why but it's cute and I'm rambling!). Like I said, most of the time I'm called Mommy. Being a mother has always been something that I longed for and I was blessed with four kids. Usually you say something like "I was blessed with four healthy, happy kids...well, I do have four very happy and very loving children. I do not have four healthy kids as much as I would love to say I do and health, being such a vital and important thing its a hard pill to swallow at times. My oldest child,"A" has Celiacs and she also has markers for an autoimmune disease. I am leaning towards Juvenile Rheumatoid Arthritis or Lupus. But Thankfully (Thank you GOD) she is able to function and behave like your typical tween. :) My second oldest (M) is healthy (Praise the Lord) and is 15 mos younger than his sister. My third child, my little guy, he unfortunately is not healthy but I'll get to that in just a bit, and rounding out the crew is my youngest and my last baby. She is healthy. In-utero it was discovered she had excess fluid in her kidneys. She will be getting what I hope is her last review of her kidneys and we will be released from the Nephrology Doctors. My 3rd child, W has a rare form of Childhood Epilepsy called ESES or Electrical Status Epilepticus of Sleep or also known as CSWS or LKS depending on which dr. you are talking to. He was a developmentally normal little boy when November 5th, 2012 occurred. That is when he had his first two seizures and we have been on this roller coaster ever since. Recently we were told medicine will no longer work, his seizures just aren't responding to medicine at this time. We are awaiting a new MRI and we are seeing the top specialist in the country in August (praying for this) to see where we may go from here. While we wait, he continues to decline developmentally. His gross/fine motor skills, language, and general cognitive abilities are beginning to evaporate right before my eyes. Now at this point, most people (myself included) would ask WHY? Why would GOD let this happen to a little boy. We know that GOD loves our children. He entrust us with the care of his most precious gifts.

• Psalm 139:13-16  For you formed my inward parts; you knitted me together in my mother’s womb. I praise you, for I am fearfully and wonderfully made.Wonderful are your works; my soul knows it very well. My frame was not hidden from you,when I was being made in secret, intricately woven in the depths of the earth. Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them.
  
  source from:http://www.whatchristianswanttoknow.com

Instead of asking, "Why W? or Why our family?" how about Why not? God has proven time and time that he hears us and he will do what is best for us. Another way I try to look at our situation is: How honored I am to be W's mom and how honored I am for God to entrust such an amazing person to me, ME! Many people have said, "If I were you I would be falling apart", which I do mainly in the shower or while driving solo so I can get it all out or late at night but I also draw on God's strength and the fact that I know He will be there every step of the way.  I use NIV version for my bible and Isaiah 40:29: He gives strength to the weary and increases the power of the weak. 

So what are some of your favorite verses about how God is always there for you?

Shan